South Africa is pioneering new ways to embed ethical benefit sharing in genomics research through community-led decision-making. Speaking at the World Congress of Bioethics (WCB) in Johannesburg on 8–10 July, Ngoni Ngwarai, assistant director of systems and operations at the SAMRC/Wits Rural Public Health and Health Transitions Research Unit (Agincourt), presented an operational blueprint for researchers, universities, funders and industry partners seeking to translate ethical principles into practical action.
South African genomics projects direct 10% of budgets to community-chosen benefits
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